View Single Post
Old 07-21-2013, 03:56 PM   #26
KristinSchwick
Senior Member
 
KristinSchwick's Avatar
 
Join Date: Jun 2011
Location: Iowa
Posts: 231
Re: Cancer secret to success?! Finding your match!

GDP, you are preaching to the choir. I did not mean to start a debate, I agree with all you have pointed out. I just selfishly want microarrays to hit the consumer as I cannot donate a large chunk of my pelvis, as I have bone only mets, and my primary tumor is long gone. What is your advice there? What specimen could I send without drastically weakening my bones and negatively affecting my quality of life. I know there are rumors that surgery can aid metastasis if the cancer has been sequestered and controlled by our natural defenses. Hello immune cells. It mixes the pot, so to speak, causing inflammation.

It would be really great for this study to get some national recognition before patients/physicians decide to toss tumor samples. I am guessing (and correct me if I'm wrong) that when looking for clear margins they actually waste much of the specimen as they cut through the tumor to get to the borders.

Furthermore lymph nodes which provide many immune cells and mobilized cancer cells could provide lots of information, but they are flash frozen during surgery to determine if they are + or - for cancer. Much to the benefit of the patient on the exam table, of course.

Thanks for taking the time to type up all this information, your doing your wife a good justice.

Kristin
__________________
[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
KristinSchwick is offline   Reply With Quote