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michka · 06-09-2017, 09:42 AM

Thanks to all for your kind answers.

Lani, thanks once more for the precious information. I did not know about the problem between TDM1 and radiation.
On Monday I am going to have a "lumbar puncture" . The imaging is not clear and they want to check if there are leptomeningeal metastases. They have been wondering since September . I thought that if it was the case it would have been clear by now. I had 4 MRIs since september because of my eye and several radiologists looked at the MRIs. They can't tell. There is a strange small zone that did not grow.
I know I have very few options and many chemos are not available in France for treating CNS tumors. I will discuss the Dana Farber article with my onc.
(back in 2006 I flew to Dana Farber because a stupid onc in France said I did not need Herceptin right away. As I had found this wonderful forum I knew Herceptin existed. I met Dr H Burstein who said "you need it!").

I believe immunotherapy will be the solution one day, but too late for me. I still can gain a few months.
Love to all.
Michka

06-09-2017, 09:42 AM	#17
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: Good and Bad News Thanks to all for your kind answers. Lani, thanks once more for the precious information. I did not know about the problem between TDM1 and radiation. On Monday I am going to have a "lumbar puncture" . The imaging is not clear and they want to check if there are leptomeningeal metastases. They have been wondering since September . I thought that if it was the case it would have been clear by now. I had 4 MRIs since september because of my eye and several radiologists looked at the MRIs. They can't tell. There is a strange small zone that did not grow. I know I have very few options and many chemos are not available in France for treating CNS tumors. I will discuss the Dana Farber article with my onc. (back in 2006 I flew to Dana Farber because a stupid onc in France said I did not need Herceptin right away. As I had found this wonderful forum I knew Herceptin existed. I met Dr H Burstein who said "you need it!"). I believe immunotherapy will be the solution one day, but too late for me. I still can gain a few months. Love to all. Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms