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Heathcliff4 · 08-22-2015, 03:45 PM

Hi Ladies,

I'm coming up on my 2 year anniversary and my oncologist has me scheduled for one last PET scan next month. The last time she and I spoke, we mentioned that after this scan, we do a blood test or wait for symptoms because studies show that it does not improve your odds if you catch it sooner.

So, my question is: Why do the PET at all? I know one other gal who was treated at UCSF while I was who is also HER2+, stage 2 and her doc doesn't order scans anymore and actually hasn't in at least a year. Although, I do love getting the results that say everything is fine, I dread the lead up to it. And, I've been pretty happy the last 6 months getting my health back. I don't want to feel amazing but be told my body is quietly destroying me (as it was when I was diagnosed).

You ladies are experts, so I'd love your feedback before I reach out to my doc about it.

Thanks,

08-22-2015, 03:45 PM	#1
Heathcliff4 Senior Member Join Date: Feb 2014 Posts: 52	To PET or not to PET? Hi Ladies, I'm coming up on my 2 year anniversary and my oncologist has me scheduled for one last PET scan next month. The last time she and I spoke, we mentioned that after this scan, we do a blood test or wait for symptoms because studies show that it does not improve your odds if you catch it sooner. So, my question is: Why do the PET at all? I know one other gal who was treated at UCSF while I was who is also HER2+, stage 2 and her doc doesn't order scans anymore and actually hasn't in at least a year. Although, I do love getting the results that say everything is fine, I dread the lead up to it. And, I've been pretty happy the last 6 months getting my health back. I don't want to feel amazing but be told my body is quietly destroying me (as it was when I was diagnosed). You ladies are experts, so I'd love your feedback before I reach out to my doc about it. Thanks, __________________ Kathryn Ellman 8/2013 Diagnosed age 42 with boys aged 2.5 and 6, Stage 11b, 1 cm her2+++, 30% ER positive, 5% PR positive, Rt Breast. Also DCIS in second spot of rt breast, high grade. 9/2013 Bilateral mastectomy, 3 nodes positive 10/13 Started AC/TH, Perjeta and Herceptin 1/14 Finished Chemo 3/14 Radiation, 5 weeks 4/14 Started Tamoxifen 6/14 Discontinued Tamoxifen due to extreme joint pain, exhaustion and depression 6/14 Started Exemestane and Zolodex shots to suppress ovaries 11/14 Finished Herceptin 11/14 Discontinued Exemestane due to similar side effects as Tamoxifen. 1/15 Reconstruction 3/15 CT Scan (routine) shows possible liver mets. 3/15 PET/CT scan shows no mets - huge sigh of relief 4/15 Began Letrozole. Knee and hip joint discomfort but minimal. Otherwise, knocking on wood - so far, so good!