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Old 06-28-2012, 08:13 AM   #3
JillaryJill
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Join Date: Aug 2011
Posts: 271
Re: INFUSING Perjeta as we speak!!! I am blessed

Sheila, I have to admit sometimes logging onto this board scares me because we build relationships with other survivors, and when they are going through tough times...it is a worry. I have been worried about you and I am so glad that this option came through for you. I saw some posts about getting a 2nd onc involved...but you have the best and now insurance approval of this drug that just got approved by the FDA...you are a pioneer...I hope you realize what you are doing for other survivors and our daughters and grandaughters. All I can say in Thank You and God Bless You as you move forward with this new treatment.
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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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