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Old 08-22-2011, 12:12 PM   #3
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Re: Support group advice

Barbara, you pose a very interesting question! As a former psych nurse, it got my attention especially. Because groups can have down sides, too, depending on their focus.
The ones I attend (or have attended) are conducted by professionals. Alot of issues can come up and alot of misinformation can be passed around if not facilitated. I once went to a few that were "chats" and I knew people were saying things that were inaccurate and misleading.
The beauty of this board, and others like it, is that we have a large enough pool of members who have done their homework on ONE type of cancer that we can police ourselves. With so many forms of breast cancer out there, it is easy for people to think one size fits all, regarding treatment etc and give advice to others that is not appropriate.
Having said all of that negative stuff, I think the idea of a support group is a good one, if it stays on the social side. Lunch together, that sort of thing. And just general sharing. OR, where do you all receive treatment? Is there a social worker on staff who might be approached to conduct a group?
The friendship and support of others is a great thing.
Keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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