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hutchibk · 08-27-2011, 07:05 PM

I moved from Ty/Herc in March to TDM1. If you think it's the next step for you, you need to call on Monday to try and start the process.... enrollment for the compassionate use/EAP closes on Sept. 6!!

http://www.clinicaltrials.gov/ct2/sh...%2F2010&rank=1

Please refer to this study by its ClinicalTrials.gov identifier: NCT01120561

Contacts
Contact: Trial Information Support Line 888-662-6728

Locations
United States, California
Investigational Site Highland, California, United States, 92346
Investigational Site Stockton, California, United States, 95204
United States, Colorado
Investigational Site Denver, Colorado, United States, 80220
United States, Florida
Investigational Site Davie, Florida, United States, 33328 United States, Illinois
Investigational Site Chicago, Illinois, United States, 60612
United States, Indiana
Investigational Site Lafayette, Indiana, United States, 47905
United States, Iowa
Investigational Site Cedar Rapids, Iowa, United States, 52403
United States, Kentucky
Investigational Site Louisville, Kentucky, United States, 40245
United States, Michigan
Investigational Site Detroit, Michigan, United States, 48201
United States, Missouri
Investigational Site St. Louis, Missouri, United States, 63141
United States, South Carolina
Investigational Site Charleston, South Carolina, United States, 29414
United States, Tennessee
Investigational Site Nashville, Tennessee, United States, 37203
United States, Texas
Investigational Site San Antonio, Texas, United States, 78229
United States, Virginia Investigational Site Fairfax, Virginia, United States, 22031

08-27-2011, 07:05 PM	#2
hutchibk Senior Member Join Date: Oct 2005 Posts: 3,519	Re: Does tdm1 work after herc+Tyk I moved from Ty/Herc in March to TDM1. If you think it's the next step for you, you need to call on Monday to try and start the process.... enrollment for the compassionate use/EAP closes on Sept. 6!! http://www.clinicaltrials.gov/ct2/sh...%2F2010&rank=1 Please refer to this study by its ClinicalTrials.gov identifier: NCT01120561 Contacts Contact: Trial Information Support Line 888-662-6728 Locations United States, California Investigational Site Highland, California, United States, 92346 Investigational Site Stockton, California, United States, 95204 United States, Colorado Investigational Site Denver, Colorado, United States, 80220 United States, Florida Investigational Site Davie, Florida, United States, 33328 United States, Illinois Investigational Site Chicago, Illinois, United States, 60612 United States, Indiana Investigational Site Lafayette, Indiana, United States, 47905 United States, Iowa Investigational Site Cedar Rapids, Iowa, United States, 52403 United States, Kentucky Investigational Site Louisville, Kentucky, United States, 40245 United States, Michigan Investigational Site Detroit, Michigan, United States, 48201 United States, Missouri Investigational Site St. Louis, Missouri, United States, 63141 United States, South Carolina Investigational Site Charleston, South Carolina, United States, 29414 United States, Tennessee Investigational Site Nashville, Tennessee, United States, 37203 United States, Texas Investigational Site San Antonio, Texas, United States, 78229 United States, Virginia Investigational Site Fairfax, Virginia, United States, 22031 __________________ Brenda NOV 2012 - 9 yr anniversary JULY 2012 - 7 yr anniversary stage IV (of 50...) Nov'03~ dX stage 2B Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo. Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin Feb'07~ Genetic testing, BRCA 1&2 neg Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin May'07~ Started Tykerb/Xeloda, no WBR for now June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic! Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2 Oct'07~ PET/CT & MRI show NED Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone) Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors. Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen. Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen. June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen. Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice. Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots. Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011. Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah. "I would rather be anecdotally alive than statistically dead." Last edited by hutchibk; 08-28-2011 at 07:18 AM..