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Old 07-22-2015, 02:31 AM   #18
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Did you have sentinel node or axilla dissection?

Brenda, I had NAC. My onc and surgeon recommended NAC hoping it would spare me mastectomy and axillary dissection. Unfortunately it did not work well and there was no hesitation about having axillary dissection. As a result I have trouble raising my arm over my shoulder level, and I still have burning, stabbing episodes and pain in my arm more than 8 years later. The 2 first years it was so painful I took Neurontin. It is better now but I still suffer from my arm. It also made my breast reconstruction very complicated. Maybe I had a bad surgeon but if they use SNB now, it is to try to avoid extra mutilation. All this to say that if you have PCR and SNB is good, why go for axillary dissection? And I am lucky! Some women have horrible lymphedema.
Having done axillary dissection did not save me from turning stageIV 4,5 years after dx. There are a lot of discussions going on between surgeons about the real use of axillary dissection even for the bad cases but there is no clear conclusion.
I am not a doctor but my opinion is that you were right not to go for it since you had PCR and clear SNB.
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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