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Old 05-07-2009, 03:03 PM   #14
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Could have not said it better Steph and I need you all to know that we are not discouraged about our choices. I am almost positive that we will be adding Herceptin back into the mix but we must tread easy, I fool you not when I say he is a skeleton. There have been such great results with this drug being used alone which is comforting.

I feel so much better with each passing moment. I always feel so well protected by this family, I have gathered strength from just having you all in my life. How blessed that we are not doing this alone, to have a fort full of warriors treading these enemy lines with us. Cancer aside and the restrictions and battles Ed faces, our life is one of great happiness, a life without regret. I am sure the course of Ixempra, either alone or with the big 'H', OR if we need to change that course.....no regrets.

I shall lead Ed with the feelings in my heart to the future we fight to experience. We shall do our best with the situation at hand and the complications that go along. He is more than ready to start tomorrow and knowing we have researched and assessed his health vs. heavier, more toxic potions......we trudge forward to make history. For each month that he is alive he has already beaten his prognosis and the statistics!

Besides all My Sweets, I know there is too much Hope to give up, many more options. So our story does not end here, it simply gets more interesting. From this day forward. Now we will meditate later and enjoy a tea together. Talk about nothing and know there is no looking back just forward. When and if this treatment works Ed will use all fortitude to break this nutritional issue. Again, an issue of great intensity and almost out of his control. And if it does not work I will jump to his rescue and change the mix.

Thanks for being here at a very large crossroad in this journey. Would never want to do this without this site and its family members. You are a great contribution to the quaility of Ed and my lives. Love>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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