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Darlene!
This was such a helpful post to ANYONE who fears brain mets, or the newly dx'd with brain mets.
As I said (I think!) in my post, it was the back of my head that really ached from being on it so tightly for so long during the CK's. Didn't yours hurt?? Or are they putting something softer behind the head now???
So pleased for you to have had such a great response to tx neck down!
I also refused WBR. Steadfastly right or wrong... and I have no regrets. I'm six yrs out from first brain mets dx and have no worries about the possible 'long term' S/E of the WBR.
Xeloda/Temodar has worked well for my current 6-8 brain mets since Aug. '05. I'm just knocking wood more often when I say that.......
Hoping you can keep that good energy that comes across in your post for a very long time!
pattyz
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