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Old 11-23-2008, 06:53 PM   #1
CourtneyL
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Join Date: Aug 2008
Location: San Francisco
Posts: 260
Conflicting PET/CT scan results

Hi Ladies - I have a question about my recent PET and CT scan results I was hoping your collective knowledge could help with.

My CA 15-3 markers have been normal since August but have been slowly climbing (last one was 25). My recent CT scan was clear. However, the PET had a few bone areas lit up. My doctor said this is most likely bone healing but it still has me nervous. Has anyone else had this experience? Clear CT, normal markers, but bone activity on a PET? Any information would be greatly appreciated. I'm trying not to worry but, of course, I am. Any information you could provide on having similar scenarios would be greatly appreciated!

Thank you!!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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