HER2 Support Group Forums - View Single Post - Brain Mets

KsGal · 04-01-2013, 07:02 PM

Denise...((hugs)) I started WBR on Christmas Day, and I have been on steroids ever since. It has taken me forever to wean off these things...Every time I would go down a step, a few days later I would have to bump it back up. I was/am so frustrated. Over the past couple months I have been able to take it down really slowly, so now I am at 2 mg every other day, but I still haven't been able to get off them. Just wanted you to know I know your frustration. As you taper, be sure to do your best to keep exercising. I didn't stick to it like I should, and now Im so exhausted and my muscles in my legs are so weak Im functioning at about 40%. Im sure thinking about you and praying for you.

04-01-2013, 07:02 PM	#102
KsGal Senior Member Join Date: Dec 2011 Posts: 585	Re: Brain Mets - new or old? Denise...((hugs)) I started WBR on Christmas Day, and I have been on steroids ever since. It has taken me forever to wean off these things...Every time I would go down a step, a few days later I would have to bump it back up. I was/am so frustrated. Over the past couple months I have been able to take it down really slowly, so now I am at 2 mg every other day, but I still haven't been able to get off them. Just wanted you to know I know your frustration. As you taper, be sure to do your best to keep exercising. I didn't stick to it like I should, and now Im so exhausted and my muscles in my legs are so weak Im functioning at about 40%. Im sure thinking about you and praying for you. __________________ Diagnosed in October 2011 Stage IV with metastasis to liver. January 2012 after double mastectomy, started taxotere, carboplatin and herceptin. Clear. December 2012 was diagnosed with five brain mets, and had whole brain radiation. Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas Clear/NED April 2015 remain NED