Thread: Scared to death
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Old 09-29-2008, 06:44 PM   #8
StillHere
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Join Date: Mar 2007
Location: Greendale, WI just outside Milwaukee
Posts: 211
Hello Louise
Feel free to read my survivor story for details. Here is a summary. There are things I would do differently, but I have always been glad that I oped to have a prophylactic (left) and needed right total mastectomy. I was unable to have reconstruction right away due to radiation treatment of right breast. I did have muscle sparing bi-lateral free flaps 12 months later. I have never regretted having the surgery. I hated the rubber boobs. They were heavy and hot. ( I hated the wig thing also). I can go w/o a bra w/ a large t-shirt or sweatshirt. I did go back 6 mos later and have saline implants placed under the muscle because as hard as it was for me to believe, I did not have enough fat to make boobs that would stick out past my tummy. Loved the tummy tuck that went along with it. I work in the surgery dept, so I was able to hand pick my staff. I agree the anesthesiologist is just as, if not more important to pick as your surgeon. I was a surgical tech for 10 yrs, so I witnessed many surgical mishaps. This did increase my fear, but I had confidence in my team. I did have to go back for emergency surgery to regain blood flow to my left flap. All turned out fine. Again, I want to state that I would do it again. I forget that my boobs are really belly fat all the time! I hope that all goes smooth for you, but if by chance there are bumps to overcome, most often they can be fixed fairly easy. Don't be afraid to ask for anti-anxiety drugs to get a good nights sleep. Take Care and follow your heart. KS
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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