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Re: ER-/PR- HER2+ Recurrence Period
Lauriesh, it is so interesting that we think we're saying the same thing when in fact we're saying something totally different. Thank you so much for helping to keep us all on the same page. I can totally see why catching Stage IV early or a little later would not make much difference at all. Guess that's why I continue the scans; they worked for my local recurrence and since I've had one I know that more are possible and it is reassuring to me to get the brain MRI and scans every 6 months.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.
Debbie K
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