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Re: ER-/PR- HER2+ Recurrence Period
Debbie, I have talked to my onc about this and he does not agree that there is no difference in catching a recurrence as a local or regional recurrence versus Stage IV. The treatment is very different for local and Stage IV recurrences. So I think for now I will continue monitoring. I will deal with local recurrences rather than risk waiting for symptoms and finding out I am stage IV. I do agree it is a personal preference and each person must make their own decision.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.
Debbie K
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