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Old 05-21-2010, 06:57 AM   #21
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Bad news, no longuer NED

actually just talked to the team and they tell me than they reviewed my last scan from 2/3months back and they said that they expect that it is localised so I feel better the registrar is calling me on Monday with treatment plan but I am pretty sure that it will be radiation.

Any feedback on supraclavicular treatments and what the best course of action? supplements ect..thing that sensitize cancer cell to rad or protect your good cells?

Tykerb is not available here unfortunately but I think i will ask to stay on herceptin. There does not seem to be many supraclavicular in the Her2+
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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