HER2 Support Group Forums - View Single Post - DCIS & Neoadjuvant treatment

'lizbeth · 12-03-2013, 03:53 PM

Darn - I wish I could have had my infusions in France. I would have loved to have a pedicure and some wine from Alsace, a nice Reisling with lunch.

I had tubs of ice, an easy chair and lots of blankets.

@Sarah - I hear the anger with the oncologist. I think it is time to let that go. She was following what was known at the time. Herceptin wasn't approved for Metastatic Breast cancer until several years after your diagnosis, Primary Breast cancer in 2007. Herceptin for DCIS , unheard of in 1999. You knew you needed it - but this oncologist, or any other oncologist wasn't in the position to offer it to you. Not even off label.

Today with a DCIS diagnosis you might be able to get access. She wasn't a bad doctor with the initial diagnosis & treatment- you were ahead of mainstream medicine.

The follow up might have been less than ideal. How did you find the recurrence?

12-03-2013, 03:53 PM	#18
'lizbeth Senior Member Join Date: Apr 2008 Location: Sunny San Diego Posts: 2,214	Re: DCIS & Neoadjuvant treatment - moving discussion to a new thread Darn - I wish I could have had my infusions in France. I would have loved to have a pedicure and some wine from Alsace, a nice Reisling with lunch. I had tubs of ice, an easy chair and lots of blankets. @Sarah - I hear the anger with the oncologist. I think it is time to let that go. She was following what was known at the time. Herceptin wasn't approved for Metastatic Breast cancer until several years after your diagnosis, Primary Breast cancer in 2007. Herceptin for DCIS , unheard of in 1999. You knew you needed it - but this oncologist, or any other oncologist wasn't in the position to offer it to you. Not even off label. Today with a DCIS diagnosis you might be able to get access. She wasn't a bad doctor with the initial diagnosis & treatment- you were ahead of mainstream medicine. The follow up might have been less than ideal. How did you find the recurrence?