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Lori R · 03-04-2010, 08:25 PM

Jackie,
Thank you for posting. I will add this to my wish list.

The standard tumor markers have never worked for me, so I recently had a Circulting Tumor Cell test. I am hoping it is reading accurately as I scored a 0. Anything below a 5 is a good sign.

I would LOVE to have some kind of marker as my only means to guage the cancer activity has been via PET/CT. While I appreciate that my Onc wants to closely monitor me, thus we've talked about every 3 month. Excessive exposure makes me nervous.

I might contact these guys and ask for a volume discount. Do you think they'd go for it?

03-04-2010, 08:25 PM	#2
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: New Test Tells if Cancer Has Come Back Jackie, Thank you for posting. I will add this to my wish list. The standard tumor markers have never worked for me, so I recently had a Circulting Tumor Cell test. I am hoping it is reading accurately as I scored a 0. Anything below a 5 is a good sign. I would LOVE to have some kind of marker as my only means to guage the cancer activity has been via PET/CT. While I appreciate that my Onc wants to closely monitor me, thus we've talked about every 3 month. Excessive exposure makes me nervous. I might contact these guys and ask for a volume discount. Do you think they'd go for it? __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)