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Old 07-17-2014, 12:39 AM   #2
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
Re: Need Advice - Scanxiety

Dear Dizzy,
No real answers in regard to scanxiety - after almost 2 years stable on Herceptin and Tamoxifen, I get all steamed up every time! Just breathe deep! Sounds like the taxol has done its job and you will be fine.
I share your uneasiness about brain mets, as my oncologist has the same attitude. I guess you could say why look for trouble? But I would also be interested in feedback about the markers from women who have had brain mets.
I hope all goes well next Monday, and will have all digits crossed.
Best wishes.... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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