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Old 03-24-2008, 10:32 PM   #14
hutchibk
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Join Date: Oct 2005
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THIS IS A POST BY BILL - I JUST HELPED HIM MOVE IT TO THIS THREAD... men, I tell ya, sometimes they are so high maintenance, LOL!


Nikki and Bill see the "Shape"

In the house we live in, Nikki and I would often "see things". Often it was just a fleeting motion off to one side, sometimes near the floor, sometimes near the ceiling, and one or the other of us would say, "did you see that?" and often the other said, "yeah, I saw it, too" This event took place about 5 years ago. We had a Rottweiler, Wyatt, about 130 pounds, but he was solid muscle, long-legged for a Rottie, and he had the biggest head of any Rottie I've ever seen. The way our house is set up, Nikki and I often sat together on the couch watching movies or TV or whatever, and we could see right into the kitchen. Wyatt's water bowl was in the kitchen off to the right and his food bowl was in the laundry room off to the left (As you know, with big dogs, sometimes it's less mess if you don't have then right next to each other), so it was a common sight to see Wyatt pass through the kitchen from right to left going from his water bowl to his food bowl. So, we were sitting watching TV one night and movement in the kitchen caught my eye, a large black shape about the size of Wyatt (hard to miss him) going from the water bowl to the food dish I thought. Oh, it's just Wyatt, I thought, then I glanced down to my left and Wyatt was laying next to me on the floor by the couch. Sometimes my mind works quick as lightning, and I thought, "oh, I guess that wasn't Wyatt". I said nothing. Ten seconds later, Nikki said, "Did you just see that?" "See what?", I said. "That big black shape move through the kitchen near the floor just now. At first, I just thought it was Wyatt, but then I looked and he's laying on the floor next to you", Nikki said. I said, "yeah I saw the same thing you did, but I thought it was just me" Nikki, "no, it wasn't just you, we saw the same thing, it was that black shape we see moving around the house sometimes." I jumped up off the couch, grabbed my sword and rushed into the kitchen, with Wyatt on my heels and Nikki on my shoulder, and flipped on the lights in the laundry room, but found nothing. From time to time, we would see the black shape in the house, but never quite like that one time.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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