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Re: Senior Member Check-In!
I have not visited this site in about 6 months and I am not sure why I decided to check-in today -- maybe it was a prod from Amy. I am sad to read of her passing I so admired her spirit.
I often think of many of the strong and caring people from this board, both here and gone , and I find it hard to believe that I have been a senior member from 2004 living with Stage IV for 14 years! The first 6 where pretty rough and unstable but I have now been NED for the last 8!
I am so grateful to everyone who contributes to this site and who helped me get through some of the darkest and scary days. I never thought I would ever experience a "normal" life again, where the sadness of cancer and the thought of leaving my loved ones was not the first thing I thought of when I woke in the the morning and the last thought before sleep.
Sometimes I just prayed to have a day when I was not overwhelmed by sadness. Happily it has now been years since I felt like that and I just wanted all those who struggle to know that no matter how dark it may seem it is possible to come back into the light, thanks to the support here.
Wishing you all a healthy or at least stable new year
Kay
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KK1
April 2004 de novo metastatic left breast 1.5cm her2++,er+/pr+ with 2 small liver mets
weekly taxotere,herceptin, xeloda
Sept 2004 NED-3 herceptin, zoladex,aromasin
Dec 2006 recurrence in liver
Feb. 2007 liver resection left lobe removed-herceptin, zoladex, switch to Arimidex
NED 16 months added zometa
May 2008 new lesion in liver 15mm Tykerb/Xeloda/Herceptin
July 2008 stable...yeah!
Sept 2008 NED again !!!
Jan 2009 fell off the wagon again spot back in the liver and fell out of menopause.
Feb 2009 RFA and 2nd liver resection to remove spot ---back on the NED wagon again continue Tykerb, Herceptin.
March 2009- oophrectomy added Femara and bi-annual Zometa
May 2009- scans clear but suspect lung nodule
June 2009- Lung VAT wedge resection to remove nodule---fungus ball not cancer!! phew
Aug 2009- NED
Nov 2009-scans again clear YAHOO!
March 2010- scans clear continue Tykerb, Herceptin, Femara, Zometa Q6mo
Nov 2009-Nov 2019 scans clear done every 6 months
Feb 2020 - Fell out of the NED wagon hard! single liver lesions and large infect cyst. 3 weeks in ICU.
March 2021- 5 cycles perjeta, herceptin, navelbine. lesion stable.
June 2021 - 3rd liver resection to remove single liver lesion. Continued perjeta, herceptin.
Nov. 2021- PET scan show 5 hot nodes near liver. 9 cycles Kadcyla
June 2021- PET scan shows progression. nodes size unchanged but even more SUV uptake.
July 2021- start ENHERTU
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