Lani
Had Taxol with Herceptine for 12 weeks then Herceptine every 3 weeks until it makes a year. (still ongoing).
It is difficult to know what came from Taxol (very toxic) and Herceptine.
I had a runny nose for the first 4 or 5 rounds then it stopped. the worst was the muscle and joint pain. Really difficult to support.
Today, I still have the severe pains all over. I must say it worsened when, on top, I started the hormonal therapy.
I need to drink because my mouth is dry. This started with the Herceptine/Taxol where I drank 4,5l liters a day. Now it is down to 2,5 liters a day. My toe nails fell off (this is Taxol) but today my nails are very fragile. My hair grows slowly.
What comes from what?
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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