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eric · 05-14-2009, 07:59 PM

I have to admit that I feel badly leaning on you guys so much when you each have so much on your own plates. That being said, I need to reach out again as I'm not sure I and the Dr are doing all that we can.
Caryn's bilirubin continues to rise even though they removed the fat from her TPN last Thursday (the doc's thought was that her liver wasn't absorbing the fat). He also felt that avoiding chemo for a bit might reduce some potential inflammation which might help her bilirubin as well. Well, unfortunately, her bilirubin went from 10.3 last week to 13 on Monday. Then today she had to go in for an emergency procedure to remove her port since she woke up with a painful port infection. The bloodwork from the hospital now has her bili at 14.3!! I know it's a different lab but I'm VERY concerned and am not comfortable sitting idly by while her liver is failing.
Justwannabe informed me that one of the risks of the Sir-spheres is inflammation of the liver so I forwarded that to her Onc but I feel like I need to push him to get the gastro specialist more involved. Any thoughts?

05-14-2009, 07:59 PM	#1
eric Senior Member Join Date: Sep 2005 Posts: 589	Need some input/advice for Caryn I have to admit that I feel badly leaning on you guys so much when you each have so much on your own plates. That being said, I need to reach out again as I'm not sure I and the Dr are doing all that we can. Caryn's bilirubin continues to rise even though they removed the fat from her TPN last Thursday (the doc's thought was that her liver wasn't absorbing the fat). He also felt that avoiding chemo for a bit might reduce some potential inflammation which might help her bilirubin as well. Well, unfortunately, her bilirubin went from 10.3 last week to 13 on Monday. Then today she had to go in for an emergency procedure to remove her port since she woke up with a painful port infection. The bloodwork from the hospital now has her bili at 14.3!! I know it's a different lab but I'm VERY concerned and am not comfortable sitting idly by while her liver is failing. Justwannabe informed me that one of the risks of the Sir-spheres is inflammation of the liver so I forwarded that to her Onc but I feel like I need to push him to get the gastro specialist more involved. Any thoughts?