HER2 Support Group Forums - View Single Post - ~'LilAcorn's (aka:Believe51's Mom) New Update

Believe51 · 03-26-2008, 01:19 PM

Mom finishes her radiation (33 total) on Friday. Skin is just starting to break and she has been faithful with her lotions. Now that skin is broken Kate mentioned a special creme to apply. I forgot the name I wrote down and do not have the heart to bother her again even though I know she would be happy to help.

Mom has handled everything so well thus far. For those who have not heard how she picked her name,she wanted her favorite Son-in-Law (Ahh, only SIL..LOL) to be proud of her!! Mighty Oak is "LilAcorn's bestest hero (smiling). There are some calcifications in the other breast that we will watch for now.

Mom will go on Tamoxifen and I was happy to give her Ed's last prescription so I would not have to flush them. Her Oncologist is spectacular and was thinking about what to put her on. Conclusion was the Tamoxifen is best choice for her situation. Her main issue is worrying about side effects.....not too bad, huh??

Any suggestions from you Fine Pals?? Do not want to miss anything along the way. She is not as sick as Ed and I thank God everyday for that but feel I am missing something.

Friend's, I have much knowledge concerning Inflammatory BC but my Mom has DCIS and I am still in training. I have been learning about DCIS since the start of Ed's journey but am not sure what else to do at this point in Mom's game.

Anything you offer will be of greatest help for us here in Lil Rhody. Sending Love>>Believe51

03-26-2008, 01:19 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~'LilAcorn's (aka:Believe51's Mom) New Update Mom finishes her radiation (33 total) on Friday. Skin is just starting to break and she has been faithful with her lotions. Now that skin is broken Kate mentioned a special creme to apply. I forgot the name I wrote down and do not have the heart to bother her again even though I know she would be happy to help. Mom has handled everything so well thus far. For those who have not heard how she picked her name,she wanted her favorite Son-in-Law (Ahh, only SIL..LOL) to be proud of her!! Mighty Oak is "LilAcorn's bestest hero (smiling). There are some calcifications in the other breast that we will watch for now. Mom will go on Tamoxifen and I was happy to give her Ed's last prescription so I would not have to flush them. Her Oncologist is spectacular and was thinking about what to put her on. Conclusion was the Tamoxifen is best choice for her situation. Her main issue is worrying about side effects.....not too bad, huh?? Any suggestions from you Fine Pals?? Do not want to miss anything along the way. She is not as sick as Ed and I thank God everyday for that but feel I am missing something. Friend's, I have much knowledge concerning Inflammatory BC but my Mom has DCIS and I am still in training. I have been learning about DCIS since the start of Ed's journey but am not sure what else to do at this point in Mom's game. Anything you offer will be of greatest help for us here in Lil Rhody. Sending Love>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!