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Old 11-30-2014, 10:18 AM   #15
rhondalea
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Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Management screwed up, Lizbeth. They didn't keep up with the paperwork, and the FDA got tired of waiting.

I think part of the problem is that in spite of all the disclaimers, some of those who came later interpreted the health reports as diagnoses, which they are not. And of course, doctors started complaining when their patients came in armed with 23andMe results, much as doctors complain when patients bring in Dr. Google results. There were some interesting saves, though, that you can read about on the blog.

23andMe is doing a study with Genentech re Avastin. I think some people in this group are enrolled. They also sell data to other researchers, but I haven't lately looked into who those researchers are. I do try to keep up with the health questionnaires, however, so that my own data is relevant for the purpose of research. (Selling the data is one way that 23andMe is able to a) further research and b) lower the cost of the test to consumers. Everyone who signs up can agree to it or they can opt out. I opted-in.)

Joanne Weidhaas may well be doing other research. I haven't followed her since the Army of Women thing. I just hope it's with something other than the KRAS-variant, because she seems to me to be barking up the wrong tree. It looked promising at first, but it just hasn't panned out. Most of what comes up in first and second page Google results has her name attached, but everything else is other scientists saying "nope, that's not it."
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2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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