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Re: Calling all stage iv sisters
As Andi said - it can't hurt to ask. I had no symptoms to speak of apart from a change on my skin during chemotherapy (I had stage 2b and w being treated with fec) - thought it was chemo related, it didn't go away and started to change when I had taxotere - I again showed my onc who ordered a biopsy straight away - results more cancer, PET scan following day revealed innumerable small spots in my lungs. I still have spots in my lungs but I have no symptoms - I look and feel (mostly apart from drug side effects) perfectly healthy!
I not believe you can live your life in fear though - information is good but I try to only look at today.
Sharing is wonderful.
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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