HER2 Support Group Forums - View Single Post - Overcoming Fear of Recurrence

Jackie07 · 08-26-2009, 01:23 PM

Amelia,

Thank you for writing.

I am sorry to hear the recurrence of your friend in your support group. Because of the delay of the diagnosis of my recurrence (always told to be 'scar tissue' after mammagrams), I made it a mission of mine to warn other sisters about the mistakes our doctors and technicians can make.

It's harder for my medical providers to compare my lab results because I've also got 3 tumors inside of my brain that had been 'Gammaknifed' in 2001. I think I am going to ask for a PET scan when I see my oncologist on the 31 of August. I think if they had done it every year after my first b.c. treatment in 2003, my recurrence would have been caught much earlier.

Having been threatened with serious illnesses so many times, I don't really care that much whether I am staying healthy or dying from some illness. I just don't want to 'go'/live in a stupid way. I am going to do my part, and let God make His decision... and I mean the real 'God', not those who think they are God.

08-26-2009, 01:23 PM	#3
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Overcoming Fear of Recurrence - from eCure Amelia, Thank you for writing. I am sorry to hear the recurrence of your friend in your support group. Because of the delay of the diagnosis of my recurrence (always told to be 'scar tissue' after mammagrams), I made it a mission of mine to warn other sisters about the mistakes our doctors and technicians can make. It's harder for my medical providers to compare my lab results because I've also got 3 tumors inside of my brain that had been 'Gammaknifed' in 2001. I think I am going to ask for a PET scan when I see my oncologist on the 31 of August. I think if they had done it every year after my first b.c. treatment in 2003, my recurrence would have been caught much earlier. Having been threatened with serious illnesses so many times, I don't really care that much whether I am staying healthy or dying from some illness. I just don't want to 'go'/live in a stupid way. I am going to do my part, and let God make His decision... and I mean the real 'God', not those who think they are God. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 08-26-2009 at 03:09 PM..