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Old 06-15-2018, 02:39 PM   #9
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 563
Re: Treatment after Kadcyla?

Hi All,

Yesterday better than expected.

Firstly got discharged from Ortho consultant re tiny bone met which has not changed in nearly 3 years. He feels x-ray every few months along with 6 weekly CT's too much. Just to call him if concerned or in pain.

Oncologist had a few suggestions for future treatment:-
Can continue on Kadcyla for a few more treatments until next Ct which would now have to change to 13 + weeks instead of 6 wkly. Treatment would still depend on bilirubin level but they would not be tied to trial rules/paperwork.

Go on a chemo - but would have hair loss again plus other side effects.. Oncologist didn't want to do this at the moment as only 1 met to worry about.

Go on AI tablet or injection.
or
Ablation & AI tab or injection.

I decided on referral to liver specialist re ablation & tablet (start now) This would have to be done asap.
If not suitable for ablation other treatments still on table. If I do others first and fail, ablation no longer an option.

Also Kadcyla still available for the future!
Zometa 12 weekly.

The only thing missed was Herceptin - but think just an oversight in a long discussion!
Geez - hope I've made right decision!!

Any thoughts etc welcome!

Take care
Juls

I am triple positive. High Er & PR

Last edited by Juls; 06-15-2018 at 02:41 PM.. Reason: Edit
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