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StephN · 04-21-2007, 12:34 PM

A survivor poll that would ask how many years in remission and their stage.

Would work on it, but no time today. I think it is a worthwhile idea.

You will see by my story at the end of my post that I am over six years since dx and more than 5 years NED on Herceptin, being stage IV. Had extensive liver mets and poor prognosis, but fought really hard with some tough drugs in the mix to achieve a complete response. Like the amazing TriciaK I have used guided imagery in my healing.

Hope these answers help your husband to have a little faith, even though this is a sneaky, pernicious disease.

My best advice - cut out the sugar as cancer feeds on simple sugars.

04-21-2007, 12:34 PM	#11
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Could set up a poll ... A survivor poll that would ask how many years in remission and their stage. Would work on it, but no time today. I think it is a worthwhile idea. You will see by my story at the end of my post that I am over six years since dx and more than 5 years NED on Herceptin, being stage IV. Had extensive liver mets and poor prognosis, but fought really hard with some tough drugs in the mix to achieve a complete response. Like the amazing TriciaK I have used guided imagery in my healing. Hope these answers help your husband to have a little faith, even though this is a sneaky, pernicious disease. My best advice - cut out the sugar as cancer feeds on simple sugars. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.