Thread: Reconstruction
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Old 04-23-2011, 07:38 AM   #7
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Reconstruction

I decided to have reconstruction 1 year after my mastectomy. I was part of a study, using a tissue expander that was later replaced with a silicone implant made by Mentor. During my reconstruction, I had a recurrence in the lymph nodes in my neck...they P.S> thought it was a reaction to the tissue expander. I thak God I demanded a biopsy...it was the breast cancer in my nodes, and I was node negative originally. My surgery was fast tracked, so I could begin treatment. I have pain, scar tissue and a capsular contracture. I have been in treatment ever since, and Mugas and echos are a struggle as my implant is on the left, and it is hard to visualize the heart. Even last year, when I had a pericardial effusion, I required thoracic surgery as the implant was obstructing them doing a needle aspiration. Reconstruction is a very personal decision....in my case, I wished I would have left well enough alone. I actually felt less deformed before the reconstruction! 8 years later, i am back to wearing a symmetry shaper to even out what the reconstruction lacked.
Many have had excellent results....if its a choice you make, be sure to research the plastic surgeon...you only want the best...many insurance companies dictate who you can go to.....this is not fair. Do your homework!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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