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Old 02-18-2009, 09:51 AM   #25
CourtneyL
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Join Date: Aug 2008
Location: San Francisco
Posts: 260
Hi Brenda - I can't answer your question about whether or not you are a good candidate but I can share my experience with you and tell you what my doctor said. I am NED in body and have 6 small spots on my brain. I added Tykerb in January to see what kind of an effect it would have by itself on the brain mets (before we do Gamma or WBR we wanted to see if Tykerb could do the trick alone). So far Tykerb is stabalizing things and I asked my onc if I could add Boswellia to the mix to see what it can do too. He read the literature and whole heartedly agreed to let me try it. I go for a follow-up scan in 4 weeks to see if the brain mets are gone, shrinking, or the same. Then we'll decide which radiation treatment to proceed with. However, I am totally optomistic that Tykerb and Boswellia will be enough to have gotten rid of the little buggers. I will keep you posted on what kinds of success I have with it. Definitely ask your doctor about supplementing with Boswellia. I am thrilled that you are doing so well!!!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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