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Old 01-09-2012, 09:55 AM   #2
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: 12th chemo-combo in ~10 yrs

Jessica

I too find out my results this week, and I am thinking I will be taken off Gemzar. On the bright side, I was on the Metronomic chemo before Halaven, and I had a good response, although not long enough. I did not lose my hair, and I loved the freedom it gave me, only having to go in for Herceptin every 3 weeks.
I also have not had Taxotere, and that may be the next drug...I had a great response from Taxol, and have never had Abraxane (insurance denied due to price).

Although I am not anxious to lose my hair again, it seems like a small sacrifice when I look at the big picture...I truly think it gets easier each time. I am hoping my counts will hold...they have been an issue on Gemzar.

Hoping the Pertuzamab will getr released soon...I am thinking it would be a great drug for both of us, with Herceptin...I was sad that TDM-1 was not my gold bullet...I see it was a short interval for you too, but it seems to work wonders on liver involvement.

Hoping this new combo will carry you to stable until the next magic potion is available....like you, they dont make drugs fast enough for me....I seem to also be getting a shorter time out of them, and then the other tolls they take on the body!

Sad I did not go to San Antonio this year, I would have loved to have met you...we have alot in common...take care, KEEP THE FAITH, and prayers for you and success of the new combo are coming your way.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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