Hard place Rock and A moving glacier!!!
so Oncologist called last night, to discuss options. Prayerfully will get Ct of chest /abd/ pelvis and bone scan done the next couple of days.
He is wanting to try Abraxane, I suggested going back on the Xeloda with IV support, and lower dose. Oncolologist has already stuck his neck out for me to do the IT Herceptin. I talked to the main Nurse for the practice today and forwarded all the Info they I have sent re the Topotecan IT treatment, But there again it is off label and I don't think I have months to sit on this one.
Talked to Neurosurgeon again today, he could get this done within the next couple of weeks. Worse case paralysis waist down, best case weakness, and lots of rehab.
My major concern is if I start chemo, surgeon already worrying about counts, steroids I am still on etc. So If I do Chemo and it does not stop the Thoracic spine lesion at T8 then all I have just wasted time? Abraxane and Xeloda causes severe neuropathy, which I already have in both feet.
Do surgery after postop would continue getting my IT and IV herceptin, and Taking Tykerb, 750 a day.
Peace Hope and Prayers
Thanks for all the input
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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