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__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE

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12-17-2015, 02:13 PM	#11
MaineRottweilers Senior Member Join Date: May 2013 Posts: 570	Re: Progression, starting TDM1 Good news! Active areas seen on the bone scan last week were not evident as metabolically active on the PET scan, the activity on the bone scan is supportive of healing lesions so even if the "new spot" on my rib is a met that was too small to show up on my last PET, it is responding to treatment and healing. Given that we are seeing good response, we decided not to change the chemo protocol. It's working, we'll use it until either, I cannot tolerate it anymore or it stops working. When that happens we have many options and will visit them at that time. I couldn't be more pleased with today's report. I went from fearing progression to seeing a glimmer of actual remission in my future. __________________ Tracy Arcari ___________________________________________ 11/12 BSE ignored the lump for SIX months. 5/1/13 IDC ER/PR- HER2/neu+++ 5/14/13 Mastectomy and SN biopsy 5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue. 5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline. 6/4/13 Installed my little purple power port. 6/14/13 Chemo started TCH 6/14/13 Informed of suspicious ares on scans scheduled PET. 7/1/13 PET Scan NED! 9/27/13 FINAL CHEMO taken! ----well, maybe not. 10/15/13 Three little tattoos. 10/24/13 Radiation begins and fourth tattoo placed. 11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter. 1/2/14 Happy New Year, you have a Goiter? Muga down to 59%. 1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER! 5/2/14 Herceptin completed! New kitten! 8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR. 2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision. 4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready. 5/4/15 Brain MRI clear (big sigh of relief) 7/30/15 Back Pain 8/31/15 Radiograph: compression fracture L2 9/10/15 Bone Scan positive 9/21/15 CT scan conclusive for tumor 10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing. 10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary. ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells. 10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine. 10/14/15 Radiation consult back to the cooker. 10/20/15 MUGA 50% down from 54% after a year off Herceptin (???) 10/21/15 Kyphoplasty L2 10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere 10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!! 10//29/15 Xgeva 10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty. 10/30/15 CA27-29 63 U/mol (<38 U/mol) 11/3/15 First Trip to see Dr. E. Mayer at DFCI 11/4/15 Surgical consult to re-install my little purple power port. 11/9/15 Radiation treatment one of five. 11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today. Yes, we really are going down this road again. 12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets. 12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15) 12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B. 12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working. 1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva. 3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????) 3/31/16 Discontinue Taxol start Arimidex, still getting H&P. 6/2/16 Discontinue Arimidex and start Exemestane. 6/18/16 PET is NEAD!! 7/1/16 Discontinue Exemestane and restart Armidex (SEs) 8/29/16 CT/Bone Scan Stable (still uptake at T10-11) 10/3/16 BSO pathology negative 10/10/16 MRI: Brain clear! 10/14/16 Switched care to Harold Alfond Center for Cancer Care 11/24/16 Xgeva, New MO preference to Zometa 12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET 1/12/17 PET shows NEAD celebrate with a new puppy! 3/29/17 CT & BS = NEAD 7/31/17 Aetna denies access to H&P <gearing up for a fight> 8/4/17 CT& BS= STABLE 8/9/17 No treatment, Aetna still denying H&P 8/14/17 Aetna appeal approved H&P through February 2018! 2/5/18 CT & BS = STABLE //