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Re: My 2 year run is over
Hi again Emilie
I just thought I would let you know that I saw my oncologist today and got my biopsy results back - unfortunately they "missed" - muscle and normal tissue - they were sure they got the lesion at the time. My larger lung mets are about 11mm and we re trying to get one close to the outer part of the lung as there is less risk of pneumothorax.
I am terribly disappointed but have spoken to a friend tonight who is an interventional radiologist - we are going to try again after my next scan. I really want some tissue as the preliminary results of testing on my initial tumor tissue show that the cancer was resistant to anthracylcines and taxotere - hence progression on adjuvant therapy. As metastatic sites can be different I am keen to know that we are using the best treatments that we can.
I wish you the very best and feel you will have a treatment plan in place very sooner and on your way back to NED.
Amanda x
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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