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Becky · 04-23-2015, 05:39 AM

It is important to find out if a second pathology was done after the double masectomy and if so, you want a copy of that. Since the chemo and herceptin were given before surgery, the cancer can change in some cases. The herceptin is killing off the Her2+ cells and "life finds a way" and changes to something herceptin doesn't bother. So it might have changed to hormone positive. If so, you need to know that so tamoxifen or something else can be used.

Most likely the breast surgeon is confused. They see so many people and more bc is hormone positive so she spoke out of turn. No excuse as they should look closely at your chart. But find out for sure. Call the surgeon and ask, " you said I should be on tamoxifen but I am hormone negative. Did something change? Is there a new or different pathology report?" Ask the same to the medical onc. And go from there.

Hugs to you and your sister.

04-23-2015, 05:39 AM	#4
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Very, very confused It is important to find out if a second pathology was done after the double masectomy and if so, you want a copy of that. Since the chemo and herceptin were given before surgery, the cancer can change in some cases. The herceptin is killing off the Her2+ cells and "life finds a way" and changes to something herceptin doesn't bother. So it might have changed to hormone positive. If so, you need to know that so tamoxifen or something else can be used. Most likely the breast surgeon is confused. They see so many people and more bc is hormone positive so she spoke out of turn. No excuse as they should look closely at your chart. But find out for sure. Call the surgeon and ask, " you said I should be on tamoxifen but I am hormone negative. Did something change? Is there a new or different pathology report?" Ask the same to the medical onc. And go from there. Hugs to you and your sister. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"