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Cannon · 01-27-2009, 09:11 PM

You guys are the best - thanks for all the loving support. He is doing ok, but I have already called his cardiologist once ("it says to call if he has diarrhea, and he's not having frequent bowels, but they are loose when he does have them, so is that a problem?") and am thinking about calling again tomorrow ("it says call if he coughs, does that mean if he coughs once, or 4 times, or what?").

The other issue is preparing my children for this earlier-than-expected-and-don't-know-when passing. They have not lost any people close to them (that they remember, my grandparents died when they were 2 and under). My older son has autism and when we saw Marley and Me over the holidays (spoiler alert: the dog dies in the end), Josh said, "Well that will never happen to Cannon," as if saying so would make it true. Yesterday I broached it again, saying "You know Cannon will die someday, right?" and he had a number of denial-type answers:
No, he won't.
Why?
But he just came home from the hospital.

One day at a time.

01-27-2009, 09:11 PM	#22
Cannon Senior Member Join Date: Oct 2007 Posts: 203	You guys are the best - thanks for all the loving support. He is doing ok, but I have already called his cardiologist once ("it says to call if he has diarrhea, and he's not having frequent bowels, but they are loose when he does have them, so is that a problem?") and am thinking about calling again tomorrow ("it says call if he coughs, does that mean if he coughs once, or 4 times, or what?"). The other issue is preparing my children for this earlier-than-expected-and-don't-know-when passing. They have not lost any people close to them (that they remember, my grandparents died when they were 2 and under). My older son has autism and when we saw Marley and Me over the holidays (spoiler alert: the dog dies in the end), Josh said, "Well that will never happen to Cannon," as if saying so would make it true. Yesterday I broached it again, saying "You know Cannon will die someday, right?" and he had a number of denial-type answers: No, he won't. Why? But he just came home from the hospital. One day at a time. __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.