HER2 Support Group Forums - View Single Post - almost 14 years NED breast cancer and apparently it's back in my lungs

Cathya · 04-25-2018, 07:21 AM

Laurel; What a week to go to Toronto! My son lives there too in the downtown so I was quick to call when I heard about the attack van. Horrible!!

Maya, Carol Ann, Donna and Melissa, thank you so much. Earlier I posted about the three things I wanted to ask my new oncologist about and one of them is a genetic clinical trial called OCTANE. Well it turns out he is the principal investigator for that study. So glad. I thought it was very interesting that my tumour is her2- and his explanation for it that herceptin had taken care of the her2+. I'm going to be very interested in the updated genetic analysis and will post here.

Thank you so much for your thoughts and prays. I will keep updating here anything new I learn.

my best to all,

Cathy

04-25-2018, 07:21 AM	#53
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: almost 14 years NED breast cancer and apparently it's back in my lungs Laurel; What a week to go to Toronto! My son lives there too in the downtown so I was quick to call when I heard about the attack van. Horrible!! Maya, Carol Ann, Donna and Melissa, thank you so much. Earlier I posted about the three things I wanted to ask my new oncologist about and one of them is a genetic clinical trial called OCTANE. Well it turns out he is the principal investigator for that study. So glad. I thought it was very interesting that my tumour is her2- and his explanation for it that herceptin had taken care of the her2+. I'm going to be very interested in the updated genetic analysis and will post here. Thank you so much for your thoughts and prays. I will keep updating here anything new I learn. my best to all, Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18