HER2 Support Group Forums - View Single Post

chrisy · 04-17-2011, 04:52 PM

Marie,
So that is what was going on...I knew something was up (or down depending on your perspective) from your FB posts. I was about to contact you through that. Glad you came here, you know we are still your family and love you.

True, nobody can replace your MO, but you are still supported "in sickness and in health" and by your loving family here.

Bonnie R was right on - there surely are support groups for lupus and you will find them. You are one strong lady; you've carried so much for so long. You know that is a gift, not a curse, to let others carry, and care for you.

I do not have much experience with this disease (one at a time is enough!), but I do know a woman who is living with it.

Although you are going through a very rough and scary time now, people CAN get through it and do. Knowing what you're dealing with is a huge step. You know this knowledge gives you power.

Believe.

Much love,
chris

04-17-2011, 04:52 PM	#13
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: ~Believe51~Diagnosed With Lupus!~ Marie, So that is what was going on...I knew something was up (or down depending on your perspective) from your FB posts. I was about to contact you through that. Glad you came here, you know we are still your family and love you. True, nobody can replace your MO, but you are still supported "in sickness and in health" and by your loving family here. Bonnie R was right on - there surely are support groups for lupus and you will find them. You are one strong lady; you've carried so much for so long. You know that is a gift, not a curse, to let others carry, and care for you. I do not have much experience with this disease (one at a time is enough!), but I do know a woman who is living with it. Although you are going through a very rough and scary time now, people CAN get through it and do. Knowing what you're dealing with is a huge step. You know this knowledge gives you power. Believe. Much love, chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure