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Believe51 · 04-16-2011, 08:19 PM

I have just been diagnosed with Lupus, multiple types of the disease. A Sister here suggested that I write to you all. I do feel selfish considering your problems with your own beast.

Although this is not fatal the disease can be if I do not control the symptoms. I have had the Lupus rash on my normal clear complexted face for 6 months now. No one could give me a reason besides contact dermatitis even though nothing changed in my life. I am so full of edema that water pills are proving useless and have an additional 30 pounds of weight. I was down to 115 pounds and I am so bloated that if you poke my feet, your print stays there for 10 minutes.

I might have had the disease for several years but stayed fit enough to fight it, not knowing of course. Eating right, severe workouts, meditation, yoga, antioxidants..etc. I can no longer handle the disease, I am one terribly ill little girl. The pain makes me feel like I am going to die. I am worried about blod clots and pain, the kidneys and removing the toxins from my body. This woman that took a total of 3, .05 mg of Xanax through a 37 month ordeal is on so much medication right now.

Anyone have any imput? I am so very lost. I cannot believe I am sick without Mighty Oak by my side. I need him so bad that it makes me cry.

04-16-2011, 08:19 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~Believe51~Diagnosed With Lupus!~ I have just been diagnosed with Lupus, multiple types of the disease. A Sister here suggested that I write to you all. I do feel selfish considering your problems with your own beast. Although this is not fatal the disease can be if I do not control the symptoms. I have had the Lupus rash on my normal clear complexted face for 6 months now. No one could give me a reason besides contact dermatitis even though nothing changed in my life. I am so full of edema that water pills are proving useless and have an additional 30 pounds of weight. I was down to 115 pounds and I am so bloated that if you poke my feet, your print stays there for 10 minutes. I might have had the disease for several years but stayed fit enough to fight it, not knowing of course. Eating right, severe workouts, meditation, yoga, antioxidants..etc. I can no longer handle the disease, I am one terribly ill little girl. The pain makes me feel like I am going to die. I am worried about blod clots and pain, the kidneys and removing the toxins from my body. This woman that took a total of 3, .05 mg of Xanax through a 37 month ordeal is on so much medication right now. Anyone have any imput? I am so very lost. I cannot believe I am sick without Mighty Oak by my side. I need him so bad that it makes me cry. __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!