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Re: Friend recently diagnosed with recurrence
Thank you Carol and Tricia. My friend is having her scan today so then we will know what she is up against soon. I so wish she would get a new oncologist. I personally have no faith in the oncologist. I spoke with my oncologist on Monday about this situation ( she saw my friend and told her she should have chemo and radiation back 2 years ago ) and she said it's not the norm to even do an oncotype in someone who has a positive node especially with it being a macro node at that time. That and when it comes to oncotypes she feels they can be a bit misleading especially when done with a node positive patient . Anyway my friends choice to seek out an oncologist that told her what she wanted to hear is done and had she gone the route I did we will never know if she would be facing this battle again. So now we wait. I have not spoken to my friend since Saturday as she has not returned any calls or text . She is known to shut down at times ( 27 year friendship ) and she knew I had my check up on Monday but maybe doesn't want to hear about it as she is going through her stuff. So I just sit patiently and wait for her to come around. Because I must remember this is now about her and not me. I do however keep in touch with her hubby and he tells me when a new test is coming up. Mainly because he knows I've been there. His wife is also aware that we talk.
Again thank you ladies . Fyi Nov 19th has been 4 years since my diagnosis and all looks well. Next pet/Ct scan March 2018
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]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
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