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Old 08-25-2010, 08:09 PM   #1
sally
Senior Member
 
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
New Mets to brain/WBR

Hello everyone. I just thought I would let you know the cancer has spread to my brain. I have started WBR yesterday and I am very nervous and scared. I have to have 18 treatments. I asked about Gamma knife but I have too many spots to count and they are all small. The biggest one is 1.4 cm. I guess that is considered small. I would love to hear any advice, experiences or words of encouragement. Side effects, short term, long term, permanent? I have done a little research on line but I like to hear it staight from experience. Thank you for listening. I hope to hear from you soon. Sally
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Dx March 2004 HER2+ er/pr+ 8/16 + lymphnodes mets to the liver Stage IV / 6 cycles of TCH and 33 rads . NED Continued Herceptin 3 years w/ Femara. Tumor markers start to rise in Jan of 2007 and swiched to Tamoxifen. August of 2007 found more mets to liver and lymphnodes outside of liver. Went on Tykerb/Xeleoda--spots on liver gone found large mass between intestines. March 2008 started TCH. Stopped Carboplatin due to allergy. Still on Taxotere and Herceptin. Nov 2008 mass is gone. 3 new spot on liver and one on spine. Radiation on spine. tykerb/gemzar for liver mets. PET in April 09 showed shrinkage still a little activity, continue tykerb/gemzar until Aug 09. PET showed new spot on my spine more on my liver and a bunch of enlarged lymphnodes in upper chest. Start Adriamycin Sep 09. more radiation on spine . April 2010- Still on Adriamycin 3wks on 1 wk off and zometa every 28 days. PET -May 2010 showed progression. Starting Herceptin/Navelbine on June '10
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