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Old 05-07-2013, 12:27 PM   #74
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: NEDenise vs NEDecadron Smackdown!

Hey Friends!
Thanks to all you drum-rollers! You're good sports to humor me and my goo-ey brain!!

Did the Avastin thing yesterday!
No side effects...fingers crossed...so far so good!

Still tired, blown up like a tick on a hound-dog's neck, but feeling hopeful and like there's a light at the end of this loooooong tunnel again.
( I know...I know...don't go toward the light!!!)
But, in the spirit of full disclosure...I was starting to feel a little discouraged by my lack of 'progress'.

According to my wonderful med onc..
Dr. Amy Clarke...
she deserves a shout out!!...
if we're going to see results, we should start to see them in the next 4 weeks.

By then, I will have had 2 Avastin infusions. And, if I'm feeling "better" then, and only then, can we start to get me off thes d*%# steroids...once and for all...I hope!!
Then, the plan is scans, 2 more Avastin infusions...
and this is where my plan, and the FAAAAAAR less important plan of the tumor board digress...

I'm planning to...
feel like my old self...
start shrinking my face and body to a more manageable size...
go on my merry way...
perhaps not NED...
but stable...
back to just Herceptin and Tykerb...
not dead...planning to live quite a while in fact!


(My 2 favorite docs agree with me...perhaps that's why they're the favorites! Certainly why they're the smartest...IMHO!)

I suspect that the dreaded tumor board still expects...
Avastin is a waste of precious time...
there is cancer still growing in my brain...
a craniotomy in needed post haste!

(So sad that they are confused and mistaken! Will they have the sense to be embarrassed by how wrong they were?)

So...in layman's terms...if this is going to 'shrink the dead brain goop'...
so the tumor board doesn't start clamoring to 'scoop the goop'...
it better start workin' quick!
Not that I plan to do anything I think is a bad idea mind you...

Now...
as to chocolate as a medical treatment...I believe my views on that are quite clear.

And, I can tell you, without a word of exaggeration that every single meal we eat at Denise's Divine Diner begins with onions and garlic. I can't think of a single meal that doesn't include those two essential ingredients!

But, like green tea...I just don't like red wine. So I just double up on the other three!!

And Andi...did you really think I would see a thread with that title...and your name attached to it...and not jump on it immediately!?!

I'll keep you posted! Keep praying...she asked boldly...and shamelessly!
Love to all!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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