HER2 Support Group Forums - View Single Post - Is there benefit in surgery for stage iv's

Lori R · 09-16-2012, 11:34 AM

Vonny,
The most important lesson that I have learned from this site is to be your own advocate. Fight to win every single battle in this war.

I am not a Dr., so I am reluctant to offer medical advice but.....I was stage IV. They performed a mastectomy. I asked for extra radiation which was kind of unheard of but my Onc said...well maybe in will prevent a local recurrance. I pushed because of the support on this site.

Well....here I am 5 years later. Granted a scarry signature line because of the liver met but.....I have not had a local recurrance.

If you get the slightest hint that your daughter is not being give a 110% chance to fight on all fronts...get another opinion. Push....who cares if you ruffle a few feathers?

Here is a boost of fiesty energy to help out....Lori

09-16-2012, 11:34 AM	#10
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Is there benefit in surgery for stage iv's Vonny, The most important lesson that I have learned from this site is to be your own advocate. Fight to win every single battle in this war. I am not a Dr., so I am reluctant to offer medical advice but.....I was stage IV. They performed a mastectomy. I asked for extra radiation which was kind of unheard of but my Onc said...well maybe in will prevent a local recurrance. I pushed because of the support on this site. Well....here I am 5 years later. Granted a scarry signature line because of the liver met but.....I have not had a local recurrance. If you get the slightest hint that your daughter is not being give a 110% chance to fight on all fronts...get another opinion. Push....who cares if you ruffle a few feathers? Here is a boost of fiesty energy to help out....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)