HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

Terri B · 12-26-2008, 11:02 AM

I was on herceptin with taxol weekly from june 2008 to Aug 2008. Now after finishing FEC, I am on Herceptin every 3 weeks until June 2009. My side effects that I can see so far:

Pain: Back pain leg pain when i've been sitting a long time

Sinus: Stuffy nose especially when laying down

Nails: like paper

Smell: Medicine smell in urine on day one and two after infusion

Skin: "crunchy" feet. I lotion them all the time. before i go to bed, and i will be awakened by "crunchiness" and have to re-apply lotion!

I'm not complaining though; imagine where we'd all be without herceptin!!

12-26-2008, 11:02 AM	#418
Terri B Senior Member Join Date: Apr 2008 Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas Posts: 354	My two cents: I was on herceptin with taxol weekly from june 2008 to Aug 2008. Now after finishing FEC, I am on Herceptin every 3 weeks until June 2009. My side effects that I can see so far: Pain: Back pain leg pain when i've been sitting a long time Sinus: Stuffy nose especially when laying down Nails: like paper Smell: Medicine smell in urine on day one and two after infusion Skin: "crunchy" feet. I lotion them all the time. before i go to bed, and i will be awakened by "crunchiness" and have to re-apply lotion! I'm not complaining though; imagine where we'd all be without herceptin!! __________________ Terri B. 46 yrs. young Dx IDC 3/6/08 1.5 cm & .6 cm grade III, Stage IIA es/pr- Her2+++, 9/9 richardson Double Mast w/expanders 4-14-08 3/9 nodes positive. additional excision rt breast 4-25-08 weekly T/H x 12 (6-2-08) Done! FEC x4 (9-8-08) Last one 11-10-08! Herceptin complete 8/10/09!! 33 RADS DONE 2/13/09! rt. breast biopsy 3/20/09 .. B9!! reconstruction complete! DEEEEEEported on 5/19/10!! almost 5 YEARS NED!!