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Re: Calling all stage iv sisters
Wow, wow, WOW - there are some amazing stories here - Thank you so much for sharing, ladies. You are all so incredibly inspiring and encouraging. I too had an amazing initial response to my first line therapy when I was first diagnosed with wide spread metastatic disease in April 2008 - my breast tumor melted away completely and I have never had surgery. Although I've had a few pesky reoccurences else where - things have mostly gone away and I am looking forward to my long and happy dance with NED very soon - just have to make sure the brain is clear and that the bone spots still lighting up are from t-cell activity caused by the vaccine - hard to know right now but that is the theory I'm going with. Otherwise, my lungs and liver have been disease free for quite some time now. Praise God!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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