HER2 Support Group Forums - View Single Post - Just started Tykerb/Xeloda and worried this combo won't work either :-(

yankeebikachic · 01-06-2010, 02:37 PM

You need to be your own best advocate for sure! And yes, please DO gain some weight. It takes some work, esp on some meds where you are running to the bathroom several times a day! I weigh 130 lbs, 5'1" and exercise lots and consider myself to be in pretty darn good shape so yes, eat more!
During my 1st round after diagnosis, I would lose anywhere from 5-8 lbs with each biweekly treatment. But by the end of the 2 week period, at weigh in for my next infusion, I would always gain the weight back. I had to really work at it, it was hard to do. And while on Ty/Xel. I swear, the food was going out faster than it was coming in! Sorry, but it was! I was eating a lot, I did not keep track thru all my weeks but I know for a fact I ate at or over 4,000 calories a day, and all healthy choices. But I knew my body needed fuel so I just kept eating.
Keep at it and make that weight gain top priority. You just have a high metabolism being made faster these days...so make something yummy for dinner with a big ol' splash of olive oil, maybe some pepper and curcumin in the mix too for added boost!

Beth

01-06-2010, 02:37 PM	#10
yankeebikachic Senior Member Join Date: Jul 2008 Location: Durham NC Posts: 73	Re: Just started Tykerb/Xeloda and worried this combo won't work either :-( You need to be your own best advocate for sure! And yes, please DO gain some weight. It takes some work, esp on some meds where you are running to the bathroom several times a day! I weigh 130 lbs, 5'1" and exercise lots and consider myself to be in pretty darn good shape so yes, eat more! During my 1st round after diagnosis, I would lose anywhere from 5-8 lbs with each biweekly treatment. But by the end of the 2 week period, at weigh in for my next infusion, I would always gain the weight back. I had to really work at it, it was hard to do. And while on Ty/Xel. I swear, the food was going out faster than it was coming in! Sorry, but it was! I was eating a lot, I did not keep track thru all my weeks but I know for a fact I ate at or over 4,000 calories a day, and all healthy choices. But I knew my body needed fuel so I just kept eating. Keep at it and make that weight gain top priority. You just have a high metabolism being made faster these days...so make something yummy for dinner with a big ol' splash of olive oil, maybe some pepper and curcumin in the mix too for added boost! Beth __________________ 4/06 Found small lump, biopsy + at 34 yrs. 5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+ 6/06 port placed. 4 Ad/Cyt and 4 Tax. 11/06 bilateral mastectomy 12/06 begin Rads 1/07 Finished Rad-started H, weekly for one year. 1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way. 7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav. Doctor refused to give me HER2 meds. 8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized! 12/08 NED continue Ty/X 3/09, 6/09, 9/09, 11/09, all scans show NED Dropping X, continue Tykerb As of 6/10, 3/11 still negative, continuing Tykerb...