HER2 Support Group Forums - View Single Post - Please let me know what you think i should do next

fullofbeans · 06-07-2010, 04:07 PM

Hi all,

Sorry for not giving news it had been full time here trying to get a plan into action, full time and I have been rather wired and obsessed with trying to find a solutio and devote most of my time to it and when I take a break I want to stay away from the computer, but thank you for being there.

First thing was going trying to get NED by radiotherapy and radiotherapy but the breast nodes have increased by the time they did the scan for radiotherapy and I think I may have felt another node starting (I am getting pretty good at it) so back on chemo instead, it makes sense (Taxol weekly)..

I was trying the avoid chemo to keep my immune system in good shape and have been also wanting to add tykerb and go on a patient prog but have to wait two weeks for the answer so I want to pay for the two weeks and see, just giving me time to think. I am also on maintenance Herceptin.

Thanks for the link christine and thanks for all the good wishes from everyone (missy we bothe recurred at 3.5 years). I have not lost hope and I am determined that is all I can tell you, and that is good news already.

Much love

06-07-2010, 04:07 PM	#30
fullofbeans Senior Member Join Date: Jan 2007 Location: UK Posts: 617	Re: Please let me know what you think i should do next Hi all, Sorry for not giving news it had been full time here trying to get a plan into action, full time and I have been rather wired and obsessed with trying to find a solutio and devote most of my time to it and when I take a break I want to stay away from the computer, but thank you for being there. First thing was going trying to get NED by radiotherapy and radiotherapy but the breast nodes have increased by the time they did the scan for radiotherapy and I think I may have felt another node starting (I am getting pretty good at it) so back on chemo instead, it makes sense (Taxol weekly).. I was trying the avoid chemo to keep my immune system in good shape and have been also wanting to add tykerb and go on a patient prog but have to wait two weeks for the answer so I want to pay for the two weeks and see, just giving me time to think. I am also on maintenance Herceptin. Thanks for the link christine and thanks for all the good wishes from everyone (missy we bothe recurred at 3.5 years). I have not lost hope and I am determined that is all I can tell you, and that is good news already. Much love __________________ 35 y/o June 06: BC stage I Grade 3; ER/PR neg Her-2+++; lumpectomies Aug 06: Stage IV liver mets: 6 tumours July 06 to Jan 07: 2FEC+6Taxotere; 3TACE; LITT March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle). Herceptin since 2006 NED til Oct 09 Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised.. Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo.. superior vena cava blocked: stent but face remains puffy April 2012: Teresa Trial, randomised to TDM1 Nov 2012 progressing on TDM1 Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes. Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor. 'Under no circumstances should you lose hope..' Dalai Lama Last edited by fullofbeans; 06-07-2010 at 04:13 PM..*