HER2 Support Group Forums - View Single Post

Becky · 12-09-2015, 07:29 AM

My sister had dcis so she had lumpectomy and radiation. Then Tamoxifen. She also got a blood clot and was in the hospital for a day on Heparin to bust it up and then warifin. She can never take Tamoxifen again and nor should you. She was highly erpr positive. Her onc wanted her to get an oophorectomy but she didn't have insurance and was tapped out money wise because of the surgery and radiation. That was 4 years ago and she is ok but due to high erpr I feel she is still at risk. She is 53 now but not quite thru menopause but I keep urging her to take Arimidex as soon as she can. I just want you to know that if blood clots happen with tamoxifen, stay away from it. I did get my ovaries removed to be on Arimidex because I got eye floaters from tamoxifen and it scared me.

12-09-2015, 07:29 AM	#7
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Tamoxifen has become an issue My sister had dcis so she had lumpectomy and radiation. Then Tamoxifen. She also got a blood clot and was in the hospital for a day on Heparin to bust it up and then warifin. She can never take Tamoxifen again and nor should you. She was highly erpr positive. Her onc wanted her to get an oophorectomy but she didn't have insurance and was tapped out money wise because of the surgery and radiation. That was 4 years ago and she is ok but due to high erpr I feel she is still at risk. She is 53 now but not quite thru menopause but I keep urging her to take Arimidex as soon as she can. I just want you to know that if blood clots happen with tamoxifen, stay away from it. I did get my ovaries removed to be on Arimidex because I got eye floaters from tamoxifen and it scared me. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"