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europa · 12-07-2015, 06:09 PM

I am having a horrible time with Tamoxifen. This year alone I have had 4 emergency D&Cs for uterine polyps. I hemorrhage uncontrollably and end up in the ER. Now, today, I spent my whole day in the ER because I felt a horrible pain in my leg that turned out to be. Blood clot caused by Tamoxifen. So, I on a blood thinner for 3 months.
And now I need to figure out just how important Tamoxifen is for me. If I continue on Tamixifen I will continue to get polyps and if I hemorrhage while on the thinner, I could bleed out much faster and it could be deadly. If I stop Tamoxifen, I would need to get a full hysterectomy and oopherectomy and switch to Arimidex. Zoladex or Lupron is not an option as I tried that and had a horrible reaction to the drugs.
So I feel stuck. Advice?

12-07-2015, 06:09 PM	#1
europa Senior Member Join Date: Jan 2012 Posts: 362	Tamoxifen has become an issue I am having a horrible time with Tamoxifen. This year alone I have had 4 emergency D&Cs for uterine polyps. I hemorrhage uncontrollably and end up in the ER. Now, today, I spent my whole day in the ER because I felt a horrible pain in my leg that turned out to be. Blood clot caused by Tamoxifen. So, I on a blood thinner for 3 months. And now I need to figure out just how important Tamoxifen is for me. If I continue on Tamixifen I will continue to get polyps and if I hemorrhage while on the thinner, I could bleed out much faster and it could be deadly. If I stop Tamoxifen, I would need to get a full hysterectomy and oopherectomy and switch to Arimidex. Zoladex or Lupron is not an option as I tried that and had a horrible reaction to the drugs. So I feel stuck. Advice? __________________ DX 10/2011 PET Scan + MRI 10/2011 Lumpectomy 11/11/11 Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) AC started 12/2011 ended 1/2012 Taxol + Herceptin weekly for 12 weeks ended 4/2012 30 zaps of radiation done 6/2012 Tamoxifen 6/2012 every 3 weeks of Herceptin for another year. Metformin Trial 8/12 10/12 MRI- CLEAR 01/13 BRAIN MRI- CLEAR! 01/13 Neck MRI- CLEAR! FINISHED HERCEPTIN 1/9/2013...Woot Woot Starting Walter Reed Vaccine Trial 2/13 CT Scans + ultrasound of abdomen CLEAR-5/13 02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging 12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy. 4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 7/27/2018 hysterectomy and oopherectomy 01/07/2019 Mastectomy and expanders put in 3/22/2019 Vtach, almost died. Cause unknown. 7/22/2019 New perky boobs put in 7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. www.mychemobag.org www.facebook.com/mychemobag 8 YEARS NED