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Re: Is it okay to cuss on here?? Cuz this is a Bitch
Linn,
I have been stage 4 for almost 4 1/2 years and I haven't accepted that this is what my life is going to be like from now on. I don't even do doses every 3 weeks anymore and I still whine and complain to my dh whenever we are getting ready to go to treatment.
And just to clarify, there are not MANY stage 4 women on this site who are Ned and not on treatment . There are 2, maybe 3 at the most. It is very, very rare ( probably 2-3 % chance of it happening)
Laurie
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diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
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